Yesterday I took Kaitlyn to see a pediatric immunology specialist--who, incidentally, was interviewed on KSBY last night (the crew showed up shortly before I left, heehee!)
He was concerned about Kaitlyn's recurring infections. He was frustrated/baffled that the pediatricians have not once taken a culture. He ordered a bunch of bloodwork to check her T-cells, to see how her body's responded to vaccines (which would be a good indication of how her immune system responds to illness), etc. He said it sounds like she probably either has a congenital immune disorder, or that somehow her skin was colonized by bad bacteria and she has it on her skin all the time. Neither of those possibilities sounds particularly encouraging to me.
The doctor himself was WONDERFUL. He spent so much time with us, just listening to me, thinking about what it could be, explaining things, etc. After we were done there, we went to the lab where I had to hold poor Kaitlyn down while they pricked her arms and finally got a vein to draw blood. It was awful. She was screaming and crying and I was fighting the tears myself.
We should have bloodwork results within a week, and I'm taking Kaitlyn to the regular pediatrician tomorrow to ask for a culture, and find out why her infection/rash is still not completely healed. I feel tired...I'm so anxious to get some definitive answers, and more than that I'm hoping Kaitlyn can be well.
My littlest girl is a gift from the Lord, and I'm so grateful He's given her to me!
Tuesday, October 23, 2007
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5 comments:
I have been a reader of your blog for some time now, but I don't remember having commented before. But I couldn't NOT comment on this. My daughter was not growing well for a while, and we had to get some tests done. We did the bloodwork routine too, and yes, it's horrible. I DID cry, and I don't cry easily (even when appropriate). I'm sooo sorry you're going through this. It's so hard to not know what's going on with your baby, and to think there may be a serious long-term condition is so hard. I pray for peace and grace as you walk the road before you. May God grant a miracle for Kaitlyn, so that she may live her days in perfect health. If God's plan is something other than perfect health, He will give mercy every day to you and her. Bless you!
praying here. nothing worse then holding a child down for blood owrk-it makes me tear up every time!!
I teared up just reading about it. We will keep Kaitlyn lifted up in prayer, and the rest of you too!
I'm so sorry, Brianna. We'll definitely be praying. I'm so glad that you found a good doctor. It sounds like you're in good hands now.
Kisses to Kaitlyn.
So so glad you liked your doctor. How frustrating to hear one dr. say he can't imagine why the others haven't done certain things. I wonder if it's because they're so busy and don't take the time to stop and think it through? Anyway, good luck today at the ped...so sad to have something "wrong" with your baby. :(
We'll be praying for you! Hang in there!
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